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November Newsletter – 2023

Welcome to our annual November Newsletter! In honor of November as National Epilepsy Awareness Month, EFNENY drafts an annual newsletter with all of the exciting news and stories from throughout the year!

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July 1 in 26- Meet Samantha Mayo

Samantha Mayo was diagnosed with tonic-clonic seizures at the age of eighteen. Now seven years seizure-free, Samantha aims to educate her community about epilepsy and advocate for change. At the beginning of Samantha’s epilepsy journey, she found her diagnosis came with new difficulties and challenges. She had fears and uncertainty about if or when she […]

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June 1 in 26- Meet Brice Skiff.

Brice Skiff was diagnosed with tonic-clonic seizures at the age of eleven. Now as a sixteen-year-old at Colonie Central High School where he just finished his sophomore year, Brice chooses to advocate for epilepsy awareness and educate his peers. Brice does not allow his diagnosis to limit his goals and accomplishments. Brice recently celebrated his […]

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May 1 in 26- Meet Whitney Belvedere

At five years old, Whitney Belvedere was diagnosed with absence seizures and had one hundred seizures daily. After a series of trials with various medications, educational training for her school, and support from the Epilepsy Foundation of Northeastern NY, Whitney is now an active fourteen-year-old who is ready to advocate for change. Whitney does not […]

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April 1 in 26 – Meet Stephen Piorkowski.

Life with Epilepsy: Stephen Piorkowski became sick with German Measles at the age of two which caused encephalitis. This illness resulted in Stephen having tonic-clonic seizures and led to him eventually being diagnosed with epilepsy. Throughout his life he has had some major falls due to his epilepsy, some of which resulted in injury, but […]