Betty DiMaria was diagnosed with focal epilepsy at three years old. She has now been seizure free for the past thirteen years and boasts an impressive forty plus years in successful business careers. Since the age of twenty, despite two break-through seizures, Betty has worked full-time without any disruptions due to epilepsy. As a result of the seizures she experienced as an adult, Betty was unable to drive for six months after each one. At a time when remote work was not a possibility, Betty faced difficulties coordinating public transportation and rides from coworkers, friends, and family. Transportation for people with epilepsy remains a significant challenge for many.

While Betty’s seizures did not disrupt her career’s success or productivity in any way, some leaders at past organizations where she was employed were disturbed to learn of her epilepsy diagnosis. While others were quite supportive, the negative reactions were still upsetting. Betty stated, “It’s time to end the stigma.”

As the newly elected president of EFNENY’s Board, Betty is excited to successfully assist the agency during her two-year term. Alongside her presidency position, Betty plans to continue her additional fundraising and advocacy efforts. Throughout the year she works closely with EFNENY, and regularly volunteers her time to events hosted by EFNENY.

What Betty Wishes Others to Know About Epilepsy: “My last seizure happened in a shoe store in a shopping mall, and no one knew what to do—including security personnel—until EMTs arrived. Everyone should take advantage of the free epilepsy first aid training from EFNENY. One in 10 people will have a seizure in their lifetime and you could be in a position to assist someone in their time of need. Epilepsy can occur at any time, to anyone, at any age. You likely know someone with epilepsy as it affects 1 in 26 of us, but we tend to hide it because of the unwarranted stigma associated with the disease.”