No one expects to be diagnosed with epilepsy. Even less expect to be diagnosed in their early 40’s. Yet this was the reality Kevin Volk faced when he was diagnosed with epilepsy at the age of 43.

Determined to not let the diagnosis control his life, Kevin has been diligent in finding the medication treatment that works best for him. In addition to a Brain Surgery in 2009, Kevin also continues to take medication each and every day to maintain his epilepsy. Now, 14 years seizure free, Kevin uses his story to inspire others to raise awareness and to share the mission of EFNENY. Kevin is able to live a full life and enjoy the things he did prior to his diagnosis, including spending his summer hiking in the Adirondacks.

Since his diagnosis and surgery, he has become more comfortable talking with and educating others, including large groups, about epilepsy. Kevin speaks at local colleges, medical schools and to general members of the community about his personal experience and about epilepsy as a whole. Additionally, he participates as co-facilitator in Project Uplift and Paces, two programs which offer support to other adults living with epilepsy. Kevin has also lobbied on 3 separate occasions on Capitol Hill in Washington DC to raise awareness and funding for programs at the NIH and CDC which support epilepsy awareness and education.

After retiring in 2017, after a long career with the NYS Senate, Kevin has specifically taken efforts to dedicate his time to EFNENY. Alongside his personal efforts to raise awareness, Kevin continuously helps organize and attend annual events such as the Confections in Chocolate Gala for Hope, Golf Tournament for Epilepsy, Walk to END EPILEPSY, bowling tournaments, and additional foundation events. Kevin has served on the Board of Directors at EFNENY since 2010 and has worked hard to secure funding.

What Kevin Wishes Others to Know About Epilepsy: “With the proper medical care, the right medications, and other treatment options, most people can continue to live a very full life.”