1 in 26

  • July 1 in 26- Sarah Hayes

    July 1 in 26- Sarah Hayes

    Sarah Hayes, a recent high school graduate who has been seizure-free for 7 years, is aiming high as she embarks on the next chapter of her life. A successful 2024 graduate of Bethlehem High School, Sarah has not only secured a spot at her top choice university, Binghamton University, but is this year’s Epilepsy Foundation…

  • June 1 in 26- Bernice “Bee” Martin Lee

    June 1 in 26- Bernice  “Bee” Martin Lee

    An Unexpected Journey Bee experienced her first seizure at the age of nineteen on her college campus. As a young adult who had never experienced a health scare like this, she attributed it to the stress of exams, lack of sleep, and increased pressure during finals week. Unfortunately, those around her at the time were…

  • Summer Safety Series: Water Safety

    Summer Safety Series: Water Safety

    Taking additional precautions to guarantee safety in and around water is crucial for all individuals, with particular emphasis on those with epilepsy. In Northeastern New York, June marks the beginning of various water-related activities due to the increasing temperatures. Nevertheless, water safety is a significant issue that should be addressed throughout the year, including within…

  • May 1 in 26- Quinn Reilly

    May 1 in 26- Quinn Reilly

    Quinn J. Reilly recently celebrated his 12th birthday. Within his 12 years of life, Quinn has experienced many challenges due to epilepsy. He experienced his first seizure at 9 months old and received a diagnosis at the age of 2. Quinn’s journey with epilepsy has been filled with ups and downs, but he has always…

  • February 1 in 26- Meet Liam Fusco

    February 1 in 26- Meet Liam Fusco

    Liam has faced multiple challenges in his 10 years of life. What started with a 7-minute-long seizure in May of 2021, turned into a diagnosis of epilepsy. Despite facing these health challenges, Liam’s spirit remained resilient and strong. With the support of his family and dedicated medical professionals at Albany Medical Center, Four Seasons Pediatrics,…

  • January 1 in 26- Meet Khrystian Benoit

    January 1 in 26- Meet Khrystian Benoit

    We are excited to introduce one of our new 2024 Winning Kids, Khrystian Benoit. The day after Khrystian Benoit and his family celebrated their 3rd Thanksgiving together, their lives were altered due to a new diagnosis. Khrystian had suffered his first ever seizure. Now, at eleven years old, after thirteen trials with different medications, many…

  • November 1 in 26- Meet Kevin Volk

    November 1 in 26- Meet Kevin Volk

    No one expects to be diagnosed with epilepsy. Even less expect to be diagnosed in their early 40’s. Yet this was the reality Kevin Volk faced when he was diagnosed with epilepsy at the age of 43. Determined to not let the diagnosis control his life, Kevin has been diligent in finding the medication treatment…

  • October 1 in 26- Meet Betty DiMaria

    October 1 in 26- Meet Betty DiMaria

    Betty DiMaria was diagnosed with focal epilepsy at three years old. She has now been seizure free for the past thirteen years and boasts an impressive forty plus years in successful business careers. Since the age of twenty, despite two break-through seizures, Betty has worked full-time without any disruptions due to epilepsy. As a result…

  • September 1 in 26- Meet Teagan Ketchum

    September  1 in 26- Meet Teagan Ketchum

    Teagan Ketchum has always had a love for hockey. Yet, being a dedicated D1 athlete in college, and now the General Manager of The Hockey Hut, a local ice hockey club in Saratoga County, did not come without its challenges. Throughout her life Ketchum was faced with a challenge: balance being a top-notch athlete while…

  • August 1 in 26- Meet Katherine Ziegler

    August 1 in 26- Meet Katherine Ziegler

    Katherine Ziegler was diagnosed with epilepsy when she was in the 6th grade. As an avid performer, Katherine was faced with challenges from her epilepsy diagnosis that made her time on the stage much different. The fear of her new diagnosis prevented her from living an active life. After trial and error with medication to…

  • July 1 in 26- Meet Samantha Mayo

    July 1 in 26- Meet Samantha Mayo

    Samantha Mayo was diagnosed with tonic-clonic seizures at the age of eighteen. Now seven years seizure-free, Samantha aims to educate her community about epilepsy and advocate for change. At the beginning of Samantha’s epilepsy journey, she found her diagnosis came with new difficulties and challenges. She had fears and uncertainty about if or when she…

  • June 1 in 26- Meet Brice Skiff

    June 1 in 26- Meet Brice Skiff

    Brice Skiff was diagnosed with tonic-clonic seizures at the age of eleven. Now as a sixteen-year-old at Colonie Central High School where he just finished his sophomore year, Brice chooses to advocate for epilepsy awareness and educate his peers. Brice does not allow his diagnosis to limit his goals and accomplishments. Brice recently celebrated his…

  • May 1 in 26- Meet Whitney Belvedere

    May 1 in 26- Meet Whitney Belvedere

    At five years old, Whitney Belvedere was diagnosed with absence seizures and had one hundred seizures daily. After a series of trials with various medications, educational training for her school, and support from the Epilepsy Foundation of Northeastern NY, Whitney is now an active fourteen-year-old who is ready to advocate for change. Whitney does not…

  • April 1 in 26 – Meet Stephen Piorkowski.

    April 1 in 26 – Meet Stephen Piorkowski.

    Stephen Piorkowski became sick with German Measles at the age of two which caused encephalitis. This illness resulted in Stephen having tonic-clonic seizures and led to him eventually being diagnosed with epilepsy. Throughout his life he has had some major falls due to his epilepsy, some of which resulted in injury, but Stephen has always…

  • November 1 in 26- Tess Harrington

    November 1 in 26- Tess Harrington

    Though newly diagnosed, Tess Harrington is determined to not let her new reality impact her previously planned goals! Diagnosed at 19, Tess is now 20 and a Junior in college at Roanoke College in Virginia. Tess recently attended the Middlebury College Arabic language program this past summer to help further prepare her for her double…

  • October 1 in 26- Sarah Bibo

    October 1 in 26- Sarah Bibo

    Sarah Bibo’s epilepsy story started with a diagnosis of tonic clonic seizures when she was just 8 years old. Years later, and on the verge of turning to surgery, Bibo’s doctor suggested one last medicine to try. With much luck, the intended effect was achieved and Bibo remained seizure free until she turned 30. “I…

  • September 1 in 26- Kennedy Foley

    September 1 in 26- Kennedy Foley

    Kennedy Foley’s journey with epilepsy started early in life at the age of just 5 years old. Now at 18, Kennedy has managed to treat the majority of her seizures with medication and has strived to take on any challenge or goal that has come her way! Kennedy is not only our 1 in 26…

  • August 1 in 26- Lindsay Pierce

    August 1 in 26- Lindsay Pierce

    Lindsay Pierce became a 1 in 26, ironically, on the 26th of July when she was just 12 years old. Diagnosed with tonic-clonic seizures; now at 17, Lindsay is currently two and half year’s seizure free thanks to a strong and solid medication routine. A dream she thought would not be possible because of epilepsy,…

  • July 1 in 26- Jaren Garrow

    July 1 in 26- Jaren Garrow

    Jaren was diagnosed with complex partial seizures at just 18 months old. Now, at age 14, Jaren has been seizure free for the last 7 months after finding the right medication to help manage his seizures. Jaren wants others to know that “living with epilepsy isn’t always easy…but you shouldn’t let epilepsy stop you from…